December 12, 2013

It has been awhile since I have written... Some is due to the winter weather and not really being able to get outside and run, second is due to various events with the holidays approaching... So much to do... gifts to buy and send off; gifts to finish making; plus need to start my holiday baking.... Plus, this last weekend -- I was pretty involved in processing TWO (yes TWO) deer that my son-in-law shot.... Plus, with the EXTREME COLD it was not easy or quick.... It took ALOT of upper body strength to get the skin off. Now we are working on converting the meat to various cuts... i.e.... steaks, roasts, ground meat, and sausages.... So that keeps a body really busy!!!! Plus, it has been HORRIBLY COLD here... I mean in the negative temps.... So my neuropathy/spasticity with my MS has been in FULL SWING!!!!! For me the damage to the nerves... It is like... image having a tooth with the nerves exposed - then drinking something very cold. It probably sends you right up to the rafters. Well, that is how it feels to me in my feet, legs, and hands. With MS - you do not have the coating on your nerves, so they are basically exposed or raw... That means that every EXTREME TEMP causes me a lot of issues. With the cold - we are talking TRUE PAIN that is very INTENSE!!!! This is an understatement .. when you are off crying because you are in SO MUCH PAIN... It is not good.. Plus, the intense pain is wearing on me, I mean REALLY EXHAUSTING!!!! Now taking my energy, that is sometimes very limited add this to dealing with the cold and it is not a good combo. All I can do is bare with it and PRAY the cold snap breaks SOON!!!! This weekend, I am hoping to be able to get over to the indoor track. I really need some serious run time in, even if it is just going around in a big oval... I am VERY, VERY glad my friend told me about the track. WOW!!!! Especially, with this winter we are having so far.. I would really be screwed out of any run time. I do SO MISS being outside and running out in the countryside or even in town. Right now, even if it was warmer I could not run out of town due to deer hunting season. Yes, I wear my LOVELY road construction worker vest - but still a bullet is a bullet and I cannot out run that!!!! I am much more afraid of that than any animals! Inside, I have PLENTY to keep me occupied. I have all my Christmas projects. I did start a HUGE project in January for my daughter and husband - but I will NOT BE ABLE TO COMPLETE. This is the FIRST time I have not completed a project in time. Oh well, it is a HUGE (California King - white on white quilt - done ALL by hand). I did get all the presents for Kollin made... That was fun!!! I haven't made anything for a little one in a LONG time!!! That did eat some of my sewing time. I hope to have the white on white quilt done for next Christmas. Plus, with TWO new family members - I HAD to have Christmas stockings for them. They both turned out great, in my humble opinion - one for my new daughter and grandson... With the Christmas holiday coming up - I really hope I can get in some GOOD run time! Even if it is inside. I don't care. Right now, I am thinking that I would LOVE to increase my mileage to get up to the marathon status by fall 2014. I don't know. The same race I did this year - they are going to do a full marathon and a half. It was a nice race. I LOVED running around the lake. The nice thing about that race is that it is in the area of Madison that I lived. Also it is at a GREAT time of year - September - not to hot or cold. Madison, WI marathon is the first part of November. If it was like this year - that day was HORRIBLE cold. The last race I did was on Thanksgiving day - it was a nice 5k in Freeport. You payment to get in the race was some canned goods for the food pantry. I thought that was GREAT!!! It was a tough race due to the fact that there was snow/ice on the pavement. Since I am not the steadiest and cannot feel or compensate well with my numb feet - it was really tough. But I did the race. Not any great time but, I enjoyed it. It was the first time they had done it and they were very impressed about the turn out. I even got a t-shirt -- that I totally did not expect. The REALLY WONDERFUL thing at this race was this man. Yes, he did the ENTIRE 5K on one leg with crutches. I know that I have my issues running with my MS -- but this man BLEW MY MIND! The determination of this gentleman was so inspiring to me!!!! It just goes to show you - with determination and the right mind-set what can be accomplished. So as ALWAYS AND FOREVER -- FORWARD!!!!

November 18, 2013

I completed the Winnebago IL 8k Turkey Trot on Saturday in 59:21. The weather was MUCH better than last year. It was raining (a cold rain) prior to the race and after the race it really came down hard. I was really ready to bag this race but, my friend Renae talked me into it. It was only fair since, I had talked her into to signing up for the race in the beginning. We even had a GREAT turnout for the race from the Pecatonica crowd!!! That was really nice!!!! I ran the race with my usual pacing being cautious of the wet pavement and any debris/leaves on the roadway. That can be very dangerous and cause me to fall. So I just made sure I stayed in my groove. About halfway the wind was picking up and it did start misting... I was seeing visions of last year's race with the lightening and hail. So I did pick up my pace a bit. But it never did anything more than a fine mist. Soon after the race, the skies broke loose and it really came down. It was REALLY nice to have such a large Pecatonica group at the race!!!! It has been hard to get outside and run because of the nasty weather we have been having. That is the way this time of year is. It is very precarious. I have tried to get out on the weekends as much as possible. Yesterday, I did go and sign up at Byron High School to run the track. It is not too far away and it is an alternative for the winter than just doing the machines. That way I can at least get some distance in even though I am just going around and around (yes, becoming a hamster). I might be looking at doing one more race.... another Turkey Trot 5K in Freeport on Thanksgiving morning. This is a benefit for the food pantry. This is TOTALLY depending on the weather. If it is not good weather - definitely NOT doing this. Otherwise, this is the time I year that I start cracking the whip on my Christmas sewing projects. I have one fairly well completed and LOTS MORE to do.... The weather also keeps me inside more so it actually helps to force me to work inside. I do a lot of sewing. It is actually a two-fold benefit. With MS, one issue (of many) is the numbness of your extremities. So my hands and feet are CONSTANTLY numb and they get very stiff. The sewing helps to keep my hands/fingers nimble. So it is very good muscular exercise for my hands. I sometimes have quite a bit of issues with my hands and small motor movements. One time, I went to vote. As you know, you have to sign when you go there. The official looked at my signature and compared it to the one on file. TOTALLY DIFFERENT!!!!! The official was ACTUALLY NOT going to let me vote. Even though I had picture ID, etc... The only thing that saved me was the wonder of a small town - a couple of the other officials there knew me and could vouch for who I was. Those are some of the weird but, true issues that people with MS have to deal with on a constant basis. Sometimes, you never know when your body is going to head you in a different direction. You have to roll with it.... That is why I keep running.... I am working on keeping my mobility as long as possible. Maybe I will have it forever, maybe not... But I am going to keep working at it. I have noticed that this year, my race times have slowed down. But I am still running. The other positive thing is that I am running longer distances. That is really where I am trying to focus my training. So as ALWAYS AND FOREVER --- FORWARD!!!!

October 18, 2013

I realize how precious everyday that I can celebrate the fact that I can overcome my MS!!! I rejoice when I take off running.... I love when I can get in a good LONG run. It shows me and the MS that I AM IN CONTROL!!!! I do know and truly understand that someday I may not have the control over this HORRIBLE disease... but right now, I seem to for the most part. I am still working on my distance running. Last weekend I set out and ran our Pecatonica Prairie Path, that is fairly flat. I did get in 12.72 mile run on Sunday. So that was GREAT!!! I need more of those longer distance runs to build towards that full marathon. This week I have been taking it easy. The weather has been less than cooperative for running outside. So, my distances have been very short or just working out inside. I have been doing more Pilate's these last few weeks. The reason being, one that my buddy, Laura, has been on vacation and I have been substituting for her; two - the lousy weather outside; and three it really helps me with my spasticity and balance issues. I think many people see people doing Pilate's and because of the slow controlled movements think that it is an easy exercise. WRONG - it is FAR FROM THAT!!!!! Not only is it crucial for a good stable core, balance, flexibility, muscle toning, strengthens bones, etc... Truly not kidding.... MS attacks and works on destroying all of these. So that is why, Pilates is so wonderful for people with MS and other neuromuscular diseases. Yes, I still fall occasionally. But, believe me it A LOT LESS!!! I can even stand on one foot without holding on to anything. Believe me, when I started Pilates there was NO WAY. I had to hold something to stabilize me. Now, I can actually not only stand on one foot but stand on my toes on one foot. Believe me - this is amazing!!!! So this is so crucial for everyday life, not just running. It has helped with my core and overall balance. That is something that MS is very good at trying to destroy! So this is why I sing the praises of Pilates!!! I do wish more people would see its overall benefits. This weekend I have a race, a 10K in Sycamore IL. I did this race last year. It is a fun race and in conjunction with their Pumpkin Festival. There is a large crowd that signs up for this race, I would say over 500 people. Some of the people are even dressed in Halloween costumes. When I run, I tend to heat up very quickly so I really do not like having anything binding or obtrusive on me. I am happiest with a tank top and shorts. The weather is getting cooler whether I will be able to wear that or not we will see. Right now, the forecast is that it is to be sunny and cool (about 40-50 degrees). For me, the cooler weather is the BEST to run in. I am ALWAYS able to go farther and quicker. Since my nerves are damaged and basically exposed - to run in the heat or too cold - is a real struggle and extremely painful. Imagine having a nerve exposed with your teeth, now drink something with ice. Most people would be in terrible pain - some for me. Except that it is not just one little nerve on one tooth, it is usually my ENTIRE LEGS AND FEET that feel the effects. Sometimes (let's get real) even my hands. I am considering one more race before the end of the year, a 8K Turkey Trot in Winnebago (neighboring town). It is a nice race and close by. Otherwise, as ALWAYS AND FOREVER --- FORWARD!!!!

October 4, 2013

YES -- I DID IT!!!! I completed and ran the Garden Half Marathon in Madison, Wisconsin on Saturday, September 28, 2013 (that is 13.1 miles), 100% no walking, without falling, and I was not last!!!!! My time was a respectable 2hrs and 40mins. I took one bathroom break but that was it. This is a HUGE accomplishment for me. Not only am I 53 years old but I have Secondary Progressive MS. What does that mean? It means that I experience various neurological symptoms, pain, spasms -- ALL THE TIME -- 24/7. It never goes away. I have had to learn HOW to run with MS. Why do I say that... imagine trying to run with a swim flipper on one foot, AND a very tight spank around your midriff and left leg, the feeling that your shoes are two sizes to small, your vision will blur now and again, your feet and legs are totally numb, AND you are using every bit of energy and concentration just to keep sequence of picking up one foot, move it forward, and repeating. THIS IS MY REALITY!!!!! Not only in everyday life but, to run is even more challenging. That is why completing this half marathon was SUCH A HUGE TRIUMPH for me!!!! When I arrived at the park early Saturday morning, Big Bird and Cookie Monster were there to send me off on my journey. I was SO EXCITED!!! Who would EVER have imagined that I would be doing this? Believe me - not me nor my doctors! But I did it! Yes, it has taken me YEARS to get to the point of running this distance but, so worthwhile. I am the same person that ONLY 3 1/2 years ago became "cane-free". Yes, before that time I was using a cane and before that I was using a walker at times just to get around. Plus, the neuropathy (nerve pain) was SO intense in my feet that I could not wear regular shoes. Then there is the balance issue... let's just say not good. The ONLY shoes I could wear was Crocs. Plus the factor that I was grossly overweight topping the scales at over 270lbs. How did I get to this point? With ALOT of hard work and support from my wonderful family and friends. Without them - I don't know if I could have done it!!! I did it!!!! When I was first diagnosed in 2006 (but had been experiencing symptoms for about 10 years prior) I started with water aerobics. This did not cause the intense pain in my legs and feet since, I was not putting any weight on them. Plus, the water helped stabilize me. Swimming had ALWAYS been my sport. I was on various swim teams growing up and in college. Running -- NEVER!!! Hated it even when we did it in gym class, now I LOVE it!!! It goes to show you - how you change over the years. Distance running seems to be something that I have mastered. Not only have I learned to read my body but, also to concentrate on my footing and balance. This is not easy. When I am running I am generally looking down. This is because I literally cannot feel the pavement and its imperfections. This is also why I prefer not to run with other people. To have other people around me, takes my focus away on my footing and concentrating on my movement. I enjoy the solitude and I also know that I am NEVER alone. Right now, I am celebrating my VICTORY OVER MS. MS is an unpredictable disease at any point, I may not be able to run or do many of the daily activities. But, TODAY I CAN. I celebrate that fact. What is in my future? Right now, I am working on increasing my distance mileage. The goal is to be able to complete a FULL MARATHON (26.2 MILES) IN 2015. Why, why not!!! I don't believe in allowing MS to beat me. I am going to continue to battle that ugly monster! I will continue my vow -- "ALWAYS FORWARD"!

September 27, 2013

OK --- I'm here in Madison, WI countdown time before the half marathon race tomorrow morning starting at 7:00!!!!! The weather is a bit warmer than it was at our practice run. That may be an issue for me. But I am not going to worry about it. I am just going to enjoy the run!!! Afterwards, it sounds like there is going to be quite a party!!! I want that picture with Big Bird and Cookie Monster. What more could a girl want in this world!!! I am really excited!!! Who would ever EVER thought in a million years that I would be doing this. I am a person that NEVER ran when I was young. Here at 53 years old with SPMS going to run a half marathon --- 13.1 MILES!!!! Yes, the person only a 3 years ago was walking with a cane. The person about 5 years ago could NOT even wear shoes because the neuropathy pain was SO HORIBLE!!! In fact, I walked my first two 5k's in Crocs. The only shoes I could wear!!!! Very very true!!! Now look at me!!! Do I still have neuropathy issues? Yes!!! But they are not as intense as before. Plus, I have learned to blow them off. You just get used to them when you feel it EVERY day!!!! Tomorrow I am going to just enjoy myself!!! For me, the entire run will be a party!! I'm going to be celebrating with EVERY step!!! As I have already proven that I can do this. So now, it is just a matter of doing an 'encore' performance. So JUST enjoy the run and celebrate it!!! Now it is time to rest. The race begins at 7a and I want to be at the park by 6a. So eat and bedtime for this runner. So as ALWAYS and FOREVER FORWARD!!!!

September 19, 2013

http://www.thisisfitworkouts.com/pam-ran-13-miles-oh-and-pam-has-m-s Yes, I lived and COMPLETED the 13.1 miles practice 1/2 marathon run last Saturday!!!! My friend Laura (also trainer, exercise instructor, and my son's former 4th grade teacher) rode her bike as I followed. We did the whole route and I ran it 100%. I did stop for one bathroom break and one minor fall towards the end. But I kept going just nice and steady. I really think Laura was surprised. She asked me when we were about to start, if I plan to walk/run it. I said, NO -- run it 100% at my speed. And that was exactly what I did. It is a beautiful route around Lake Monona in Madison, WI. It was nice having change of scenery along the way. We past gorgeous lake front homes, over the bridge to downtown, saw the beauty of the capital building with the lake in the foreground, Monona Terrace, through parks, etc. I passed all kinds of people; some fishing, some walking dogs, some running, a group of military/veterans running in a group. I said, "Hi!" to all of them. I felt so empowered - that I was ACTUALLY DOING THIS!!!! It was amazing when we got to the bridge and I the GORGEOUS view of the Capitol building and downtown Madison. I was very happy!!! I was born in Madison and it seemed fitting for me to do this HUGE challange here. I was keeping in mind all the years and struggle it has taken me to get to this point. I was also keeping in mind ALL the people with MS that are currently struggling. MS is a struggle (understatement)--- 24/7 - no doubt. But not ALLOWING it to over take you is the key. Yes, I know right now I have accomplished this. Will I be able to do it again, don't know but I am going to give it my damn-ness! I am so blessed to have a great support system of family and friends. It really encourages me and motivates me!!!! The whole run I just locked into my pace and followed Laura as she rode her bike. Just nice and easy! I was getting tired about the 12th mile and did take a very minor tumble. Laura checked me for any big cuts and/or bleeding (since I really very rarely feel sensory pain) and I was OK so off I went. This took all of maybe a minute or two. Afterwards, I walked/paced awhile in the parking lot to get the nerves and muscles calm down. Then I drove to Stoughton for my lefse and coffee breakfast. I was able to sit and enjoy my breakfast/lunch and just relax. Afterwards, believe it or not, I spent the rest of the afternoon shopping and visiting with friends in Stoughton. I felt fine. I just needed my "down time". Now the race is a week away. I am doing shorter runs this week. I don't want to get to over trained and not accomplish the actual race. But I think I am feeling good about everything and being able to handle the distance. Who would have EVER in a million years fathom that I could do this. I know that I did not. Even if you would have said anything about running a 1/2 marathon two years ago - I would have fallen over laughing. ME - 50+ year old, who NEVER ran before, with Secondary Progressive MS... It just goes to show you - that if you dream it and really want it - you can obtain it. What is my secret? It has been YEARS of HARD, HARD WORK; lots and lots of exercise; DRASTIC change of in my nutrition lifestyle to whole foods; drastic weight loss (over 120lbs); and overall improvement of general health. This is not something you do for a few months -- this is a TOTAL LIFESTYLE CHANGE... I am not only one that has experienced drastically improved via this journey - there are others of us out there. But it takes work! I believe in continue to fight the MONSTER OF MS and I will not stop. Now I am focusing on completing this race then,???? The sky is the limit!!!!! REMEMBER, ALWAYS FORWARD~!!!!!!!

September 13, 2013

TOMORROW is going to be a BIG, BIG DAY!!!!! WHY?????!!!! Tomorrow, I am going to practice running the 1/2 marathon route in Madison, WI. My friend, Laura, is going to bike the route ahead of me so that I do not get lost. She will be biking slow because, I am not the fastest runner but that is OK. I do not care about speed, I care about longevity!!! I do wish I would have gotten in more distance practices in - that part does bother me. But this last month, has not been good for that - hot weather, wedding, new grandson... But - oh, well.... I am getting in this practice run in. That will help me so very much! Like I say... I am not going for speed (I cannot do speed). I am just going for endurance - staying upright, run 100%, and finishing (hopefully not last). That is my WHOLE goal!!!!!! I have really worked for this moment.... WHO WOULD HAVE THOUGHT --- only three years ago I gave up my cane and started running... NOW to do a 1/2 marathon -- that is 13.1 miles -- WOW!!!!!! So definitely keep me in your thoughts tomorrow -- that I accomplish this and live afterwards!!!! I am dedicating this run to my WONDERFUL new additions to my family... #1 that beautiful grandson of mine... #2 my new daughter and son.... I cannot be more blessed!!!! My MS is in a state that is fairly manageable. Yes, I still have issues... lots of issues... I wish I could sleep an entire night through without the DAMN legs seizing and wanting to move all the time and feeling like there is hot ants running up and down them... That is a BITCH!!!! Or the fact that - of the numbness and spasticity in my legs and feet. Of course, this heightens when stressed (like running)... I WILL NOT ALLOW MS TO OVER TAKE ME!!!! DAMN THE SYMPTOMS --- DAMN THE MS RIGHT TO HELL WHERE IT CAME FROM!!!!! I am also very blessed that the EXTREME hot weather has broken... (MS and heat do NOT get along - understatement!!!) So this will be very beneficial to my run!!!!! I have run up to the 13 mile mark but never past it... so this will be a true test. Plus, I have not had that many long runs. I was able to get in quite a bit of long runs before the Syttende Mai race... But the weather was cooler and did not have that horrible humidity... So what I am going to do while I am running is ENJOY IT!!!! I am going to focus on the blessings in my life, enjoy the fact that I am doing this run in my hometown and just enjoy the run!!!!! AS ALWAYS AND FOREVER --- FORWARD!!!!!

September 5, 2013

WOW!!!! What a whirlwind of activity in our family!!!!! So much in such a short span of time!!!! Where do I begin.... Let's begin chronologically... Jeremy and Anna's wedding on 8/24/2013 was beautiful and wonderful!!!! It was a perfect day with perfect temperatures. We started the day by going to the park where the reception was going to be held. Jeremy had me, my husband and some friends worked on the set up of the room. It did not take any time at all. The only thing I knew from talking with Jeremy was it was at a building in a park. I did not know that the building was on the Chesapeake Bay... Talk about GORGEOUS!!!! We even did something unusual - we stayed at a Hostel in Baltimore, right across the street from the Basilica. It was really fun! We meet some VERY VERY interesting young people. One was riding his bike from NY to Florida. He was a professional dancer on Broadway and wanted to take some time to do some serious soul searching. Another young man, from India, was completely blind. He was doing some graduate work with John Hopkins dealing with the blind. So that just added to our trip, to meet these wonderful people! As you can imagine, I did not get much mileage in that week. Then the following weekend, (last weekend), Jeremy and Anna were here from Maryland. They are traveling to their new home in Denver, CO. It worked out PERFECT!!! Because one week from their wedding - Kollin, our new grandson was born (8/31/13)!!!!! I was happy that Kollin was born when everyone was home!!! That was really special, he was able to be greeted by his new grandparents, aunt, and uncle!!! Now, things are calming down. Jeremy and Anna have left to continue their travels to Colorado. Elyse is home with Kollin. So the new family is beginning their adjustment to having a new baby in the house. I am getting back to my training for the 1/2 marathon. I was trying to work on my distance last weekend but, I have been plagued by some stomach bug for a good week. But by Sunday, I was able to get my distance up. I did 8.16 on Sunday and 9.08 on Monday. This weekend, I only have time for one long run (if the weather is OK). So I am really hoping that I can get that in and go even longer... Then a week from this Saturday, I am going to practice running the route. My friend, Laura, is going to bike it so I do not get off course. This way I will be familiar with the route and it will help me psychologically just knowing that I can do it. Then I will have a week to do shorter runs to the actual event. I have so MANY GREAT and WONDERFUL things that I am celebrating during this run... The marriage of Jeremy and Anna, the birth of Kollin, and my own celebration of beating my MS and not allowing it to over take me. I find it very sad when I hear so many people with MS say, "I can't do anything like that." I have been at the bottom - using the walker/cane because I could barely walk, weighting more than 270 lbs, having HORRIBLE fatigue issues, and horrible balance issues.... I know what it is like -- I have been there done that. The amount of progress that I have made is amazing and I do not plan on stopping. You have to decide what you want out of this life. I choose to live to the fullest! I plan to be as active as possible! I plan to not allow MS to overtake my life! I want to be active, enjoy my life, enjoy my family, travel, and do everything and anything I want to do!!!! So remember -- ALWAYS AND FOREVER FORWARD!!!!!

August 14, 2013

Well, YES I AM ALREADY FINISHED withMY 1000 MILE IN 2013 CHALLENGE!!!!!! YAHOOOOOOO!!!! Now, let's see how many I can finish before the end of 2013? It will be interesting!!??? To date, I have ran 13 days in a row!!!! I know EXACTLY why I have been able to do this --- it is because I don't have that 2 days of "Avonex funk". That is what I called it... The Avonex is a MS drug that is an injectable that I took for years. For almost a year, it would take me at least 1 1/2 days to get over what I termed the "Avonex funk". You don't feel really bad - just very low energy and every muscle in your body weighted about a 1000 lbs... Now, with the new drug, Tecfidera, I don't have ANY of those issues. That is pretty evident with the number of days in a row that I have ran. So with that I could not be more THRILLED!!!!!! Today, I am going to take a rest day from running. Just because last night when I ran I could feel it in my knees and shins a little bit. Plus, tomorrow is still on the cooler side and I want to try to get some big miles in. This Saturday, I do have a little race, a 5K, in Stoughton, WI. It is a fun race with some steep hills. Afterwards, there is a nice little festival. Plus, you can get ALL the coffee you want... It is a coffee tasting festival. Stoughton, because of the Norwegian heritage, is known as the Coffee Drinking Capital... I did this race last year and I enjoyed it. So I decided this is one I wanted to do! I did get REALLY close to the 13.1 miles last weekend... Saturday I ran 12.08 miles. The weather for running has been in my favor. The weather for swimming as not been very good. We actually decided to close the pool for the season. We did this for a few reasons including; the cooler weather and so many family events going on. I ALWAYS HATE closing the pool. It means that nice warm days are numbered. But this year, with SO MANY WONDERFUL things going on --- it is hard not be happy and excited!! A week from this Saturday, we are in Maryland for Jeremy and Anna's wedding... HOW EXCITING!!!!! Then at any time from that point, Kollin will be born - our FIRST GRANDBABY!!!! Then September is the 1/2 marathon in Madison... So as you see - I definitely will not be bored!!!! http://beta.active.com/madison-wi/running/garden-half-marathon-4-mile-run-walk-2013 This is the website to sign up for the 1/2 marathon --- IF ANYONE WOULD LIKE TO JOIN ME!!!!! Afterwards, you get your picture taken with Big Bird and Cookie Monster... That is what sold me!!!!! So as ALWAYS AND FOREVER FORWARD!!!!!!

August 7, 2013

Last week I did get in some nice mileage... I was able to do some fairly longer miles due to the mild weather. Also this week I have STOPPED using my injectable medication and gone to the new oral. The first month you DOUBLE the dosage. My only issue has been some occasional nausea but, not really too terrible. I have found that when my tummy is REALLY empty is when the nausea seems to be more heightened. After I eat something, it seems to settle down. So on the whole -- so far so good!!!!!! Right now, it is still staying fairly mild with low humidity. Great for some long runs!!! Last Sunday, I did get 10.51 miles in one shot with 100% run. It actually was a nice paced run - I could have gone farther but I needed to get some chores done. So last week, I did get 41 miles in. That is the most in quite awhile. It is due to that cooler weather and low humidity. I noticed when we went shopping on Saturday that I had to get a size smaller in pants. So now I am down to a single digit size. I would LOVE to lose about 4 lbs before the wedding. I am REALLY REALLY close. If I can do more longer runs that REALLY HELPS with the weight lost!!!!! Sunday, I was out running and part of one street had just been graveled. I do NOT do well on non-pavement. It is difficult for me to control myself on gravel. I do not have the proper nerve-feelings in my feet nor the ability to change footing fast enough to accommodate the rough terrain. But I just took it nice and easy (still ran it 100%) and I stayed upright 100% of the time!!!!!! That I really liked!!!! Since, I seem to be having a pretty good experience with the Tecfidera so far - I should be able to get in some decent mileage over the next few days!!!! That would be AWESOME!!!! Now that we have officially entered August - we are in count down phase for two HUGE EVENTS in our family!!!!!!!!!!!!!!!!! #1 Jeremy and Anna's wedding and #2 the birth of Kollin (our 1st grandbaby). I am already known in our small town as that VERY VERY STRANGE OLD WOMEN that runs all over the place ... now I will have the ADDED TITLE of being that VERY VERY STRANGE OLD NANA THAT RUNS ALL OVER!!!!!! It really is a small community - I feel I am doing them a SERVICE by giving them SOMETHING to talk about. One of my running friends told me that whenever her and her daughter go somewhere - her daughter is always looking around to see if she sees me running somewhere in the area. I am the "Where's Pammy of Pecatonica!!!!" Hey - could be (and have been) called MUCH MUCH MUCH worse!!!!!!! Actually, Wednesday is usually my rest day but it looks so nice outside with mild temps that I may have to go for a run this evening... Remember --- ALWAYS FORWARD AND NEVER NEVER NEVER NEVER STOP!!!!

July 30, 2013

Well, this past week was not a really good week for my distance running... I did get 3 days in of over 7 miles at a shot. I am still working on my distance. The temperature outside the past week has been very mild. But my body has not full cooperated to take advantage. I hope by Thursday I can get out there and grab some real distance. That 1/2 is coming up so, I have to prepare. I also have 2 other races that I am planning before the end of the year. One is a 5K in Stoughton WI - the Java Jog. Afterwards, you get to drink ALL the coffee you want... (Can we say a whole day of being HYPER!!!!) The other one is in Sycamore IL a 10K in October. So between those three races that will wind up the season. Then I will be back to training for the 10 mile race in Stoughton in May. With all the activities going on in my life, that is really all I can handle right now. I have two MAJOR events in August - the birth of my first grandchild and Jeremy and Anna's wedding. Both events are very exciting!!!! In the meantime, I will just keep running. I also have been doing quite a bit a teaching of Pilates for my buddy, Laura. Pilates has helped my TREMENDOUSLY with balance and overall strength. It has even been studied and proven that it is helpful for people with MS and other neuromuscular conditions. I can not stress the importance of this activity enough for people with balance issues. I also JUST received some GET NEWS!!!!! My new medication Tecfidera (an ORAL MS drug) is FINALLY going to be delivered by the end of the week!!!! I have been waiting for a month for this medication but there has been screw ups between the pharmacy and the drug company. Anyway.... I will have it!!!! NO MORE SHOTS!!!! That does not upset me at all!!!! No more site reactions from shots --- no more with the 2 day Avonex funk afterwards (you folks on Avonex - know exactly what I mean!!!) I am praying for CLEAR sailing!!!! This is REALLY my picture of what I am really praying was my LAST and FINAL shot!!! HEY!!!!!!!!!!! I have been giving myself shots for over 7 years... So I will be FREE of that!!! I will let everyone know how we (hopefully) progress with the Tecfidera. I am voting for POSITIVE!!!!! With such good news - and more races to look forward to - and cooler weather... I am planning on really hitting some distance this week. I am SO EXCITED!!! So many WONDERFUL things going on in my life!!! I want to run in celebration of all the excitement!!! As always and forever - FORWARD!!!!!!!

July 17, 2013

I was able to get in some fairly longer runs last weekend. I was able to do 3 days in a row of 7.5 miles. I would love to be able to do the same this weekend. The only factor that would prohibit me is the heat. I will try to get up as early as possible and go. That is all I can do. I have to be VERY CAREFUL about the heat... As I have discussed before, people with MS and heat are not a good mix. In fact, it is a dangerous combination. My body cannot regulate internal temperature like the normal person and if my core temp stays on the HOT SETTING - then various things basically melt. This means cells, organs, muscle tissue, on and on.... So I am careful, even when I run in the afternoon. It is for short distances and immediately in a cool environment. Also -- the 1/2 marathon train is VERY MUCH ON!!!!!! Yes, this week I officially signed up and PAID for the race. The race is in Madison, WI on Saturday, Sept. 28th. So I have time to keep building my endurance and distance. I also feel that running in some of the heat (carefully) I am building that endurance -- even through it may be only 3-4 miles... It also looks that by the time of the race - I will be an official NANA!!!!! My daughter said that, the baby will be born maybe as soon as the end of August. They are thinking of having her deliver a couple weeks early. I have already decided and dedicating this race to Kollin, his running Nana!!!!!!! As for my overall, miles this year... I am really doing well!!! I have 847 miles this year to date!!!! Not bad for an old woman with SPMS!!!!! Last week I had my bi-annual visit with my neurologist at UW Madison. He is still amazed and I am doing very well. The injectable Interferon that I have been on for years is really wearing on me. It takes me anymore a couple of days to regain my energy level and focus. He has decided to put me on the new ORAL MS drug... YES - I SAID ORAL!!!! NO MORE SHOTS!!! I am not talking little sub-Q shots --- no these are IM - with the 2" needle... Yes - that is what I do to myself EVERY EVERY WEEK!!!!! I am down to ONLY 2 more weeks of the injectable drug and then to the pill. I pray that it works with my body and there aren't any weird reactions!!!!!!! All I can do is try!!!!!!! Yes, I do believe that my progress has come from the change in my nutrition and exercise. But I also believe in maintain the drug therapies. I do not discount any of that. There are some people with MS that follow the path of nutrition and exercise and see they are improving. Then they discount the drug therapies. I am not so sure about that... So I have decided to keep with my drugs. Maybe it is the right thing or the wrong thing. I do not know, the Dr's don't really know... So I am just going with what my gut is telling me to do. That is all anyone can do, isn't it????? Right now, I just stay focused.... I am focusing on my running and all the WONDERFUL EVENTS HAPPENING WITH MY CHILDREN!!! To say my life isn't good -- is SO VERY WRONG!!! I am blessed in MANY, MANY, MANY WAYS..... When I was first diagnosed - like many of us-- I thought "Oh, my God... I am going to be in a wheelchair and in a nursing home being taken care of... #1 - to lose my independence would kill me - I am WAY to Irish for that!!!! A lot of that beginning encouragement came from my son (yes - the Marine). Who encouraged me to push the limit... I did it... I have lost OVER 130lbs - running - and my overall health is EXCELLENT!!! I have a WONDERFUL SUPPORT of my family and dear, dear friends... What more can anyone ask of this world???????? So get up and get out there... Does it hurt? -- Yes, but HELL with it... it HURTS EVERYDAY whether you move or not!!! But muscles are not forgiving... if you don't use them, they become mush.... Then it takes FOREVER to build back up... Don't get as bad as I did... Go, the more you do, change that nutrition to a whole foods approach, throw away the red meat, processed foods (McDonald's), cow's milk, and eat more fruit and veggies. Preferably raw - you get more minerals/nutrients from them... You will be AMAZED with the change... It does take time -- for me it took about 4 years --- BUT WOW!!!!! It is so worthwhile!!!!! So do not let MS take you down - tell it to go to HELL where it belongs!!!!! So as ALWAYS AND FOREVER --- NEVER STOP AND ALWAYS FORWARD!!!!!!!!!!

July 2, 2013

I have been doing all short runs lately, nothing over 5-6 miles. One problem was having the poison oak (that was miserable). I could hardly stand having my calf sleeves on - not fun. So I had to go for short runs. Then there is always the weather. It has not been too terribly hot but it has been rainy. On the whole, so far, it has been a very cool summer. So if it is not one thing it is the other... Oh, well. I know I really need to get myself out there and do some long runs. That half marathon will be here before I know it and I need time to prepare. This weekend is the July 4th holiday and I am NOT running the Stockton 5K. I have been doing that race even when I was still using my cane. I am really trying to economize as much as possible due to the trip to Jeremy and Anna's wedding. But I am going to spend on ONE RACE - the half in September!!! I just want to keep everything as tight as possible. I am really looking forward to going to Maryland in August for the wedding. It will be SO MUCH FUN! Plus, to have the opportunity to meet Anna's family. That will be really special!!! I know that my daughter REALLY, REALLY wants to be there but with being due with the baby only a few weeks from their marriage date - it is not possible. So I will just takes LOTS and LOTS of pictures for her. I am dedicating my 1/2 marathon to my soon-to-be grandson, Kollin. I was invited to Elyse's ultrasound the other day. It is 4-D - the clarity is AMAZING!!! I framed the one printout of the ultrasound and put it next to Elyse's baby picture. And DO YOU EVER SEE THE RESEMBLANCE!!!! I was SHOCKED till I put the pictures next to one another!!! So see - I have to work HARD!!! I also have to really get out there and get in some distance. The heat/humidity is still a HUGE factor for me! I plan this weekend to try to get in some distance. I might stay closer to town just due to any heat issues. Then if the sun and humidity are starting to work on me, I can get home rather quickly. That may be my best solution. Overall, I am doing very good with my mileage... I am currently at 802 miles for the year!!! So the 1000 miles - will not be a problem... Actually, I have been doing OVER 100 miles per month - so I should have this done in September... Then on to the next challenge... whatever that may be... First, I have to have the 1/2 completed. That is what my WHOLE focus... So right now... just working on keeping myself moving forward... ALWAYS FORWARD!!!

June 19, 2013

I embarrassed to admit that I have only gotten in ONE LONG RUN... It is SO VERY DIFFICULT for me in the summer. The "heat/humidity switch" has been turned on. So with that - it is close to impossible for me to do any distance. I have been pushing on doing the shorter distances (4-6 miles) almost daily. I have also been working feverishly on my deck. I have scrubbed it (by hand) down to the natural wood then stained every inch (also by hand). It was horribly hard work - but I did it! It actually really looks awesome - better than I expected. Now, working on getting the pool up and running. This is the latest I have EVER opened the pool but, the weather has been so miserable. Oh, well.... Now, it is finally getting into pool weather. I am ready - freshly renovated deck and "new" stairs (thanks to my friend). I also have to try to get in a longer run. I REALLY REALLY want that 1/2 marathon. The only way I am going to be able to accomplish it is to do some long runs. This morning was actually very conducive to doing a long run - the humidity was non-existent and there was a slight breeze. But I had a time limit and had to get to work. I am really hoping that I can get one in tomorrow. I feel I am going to lose my "long distance muscles-endurance". So I am hoping for taking off early (I mean EARLY like 4 to 5am). That way I can hopefully get away from the heat/humidity. Otherwise, I have been doing well with my shorter runs even in the heat/humidity. I have noticed that from last year, my endurance has really increased even more!!! That is SO VERY AWESOME!!!! I still attribute it to my nutrition and exercise. It is AMAZING how I have progressed. I have gone from someone who was using a walker and could barely walk down one house and back. It would pretty much kill me. The neuropathy pains in my legs/feet were SO INTENSE that it was not even funny. Plus, all the aspects of being grossly over-weight. So I am working hard not only to overcome my MS (as much as possible) but also my overall health!!! Remember, I am going to be a Nana soon - and want to be a viable and active Nana!!!! Plus here is a picture of our cross-fit EXTREME exercise group!!!! I am talking TRULY VERY DIFFICULT exercises. But I stick in there. Yes, there is some exercises that I have to modify but that is OK... I keep going... So as ALWAYS FORWARD and to NEVER NEVER NEVER NEVER STOP!!!!

June 11, 2013

My 1/2 marathon training OFFICIALLY began last week!!!! I was able to extend my country route a bit to 13.11 miles. I didn't run it 100%. I stopped for one bathroom break. Then towards the end the heat was getting to me and I did have to walk a bit. But I did make it!!! At this point, I am going to have to stick to that route for awhile. I really don't think I can go any further. But the point is I MADE IT!!! I have time to keep working on my mileage the 1/2 marathon is not till September so I am in good shape. Right now, the weather is starting to FINALLY turn to summer. That means - heat and humidity. So in order for me to survive ANY LONG RUNS I am going to have to get going extremely early - like around 4:30a... NOT KIDDING!!! It took me 3hr10mins to do that run... So with leaving the house at 4:30 will get me home around 7:30a. I just have to try to beat the heat. I will schedule the rest of the day to float in my pool.... I know what a hard life.... Also, I have ANOTHER incentive to do the 1/2 marathon. I won a BEAUTIFUL bracelet and necklace that commemorates a half marathon. They asked me to write a short paragraph and submit. I couldn't believe it!!!! SO NOW I HAVE TO DO IT... I REALLY WANT TO BE ABLE TO WEAR THE JEWELRY PROUDLY!!! So I see this as signs all leading me to do the 1/2. Plus, I want to be a Nana that my grandson can be proud of!!! So, yes --- ALWAYS FORWARD!!!!!

May 31, 2013

Well, made it through the first 5K race of the season last Saturday - Pecatonica Library 5K. They had changed the route a bit so we were "off road" during some of the transitions between road and the Pec Praire Path. This for me is EXTREMELY hard!!! I am good at "locking into gear" but changes of pavement or conditions are really tough. But I was able to not only maintain upright but also to improve my time from last year a bit. Last year, I was 33.23 mins. This year ---- 33 mins EVEN... I know not that whopping improvement that you thought it would be. But considering all the breaks in surface and being off road - this to me was VERY GOOD!!! I did not place in my age group but that is OK... I know I did my best and actually improved not only with my time but having the balance to keep running despite the rough surface area!!!! I was actually very pleased!!!!!!! So now what is next.... I am not sure... I have not signed up for any new races. I really do want to get back to working on increasing my distance. It has been tough this week due to the fact that it has been rainy and EXTREMELY humid. The humidity just kills me. I cannot do any distance in that at all. I run about 2-3 miles and I am ready to bag it in... So I am praying for a cooler days this summer so I can work on my distance. I am really hoping that if not this weekend - next I can get in a nice LONG run... I really want to increase to over that 12.25/12.5 mile mark.... All I can do is keep trying.... As always --- FORWARD... ALWAYS FORWARD!!!!!

May 20, 2013

Yes, here I am with the coveted 10 mile Syttende Mai 2013 race shirt!!!! Saturday was GREAT weather... not too cold or hot. It did start heating up for me toward the end. But this year, NO TREMORS AND RAN IT 100%!!!! My time was 2:06; last year 2:14. So I improved but, last year I did walk some. But I was pleased with the overall. I was running at a nice even/steady pace. That is what I intended so that I could just keep everything on a nice even keel. When I got into town I passed the intersection with the police officer where my arm started tremoring last year but this year... I no tremors just kept going... Then I continued through downtown and turned the corner to head toward the park. At this point, it is downhill. I kept saying, outloud and pretty loud.... "keep it together"... I was working on my stepping. I was getting pretty fatigued and it was getting warmer. I was reminding myself to keep watching my footing so I did not tumble down the hill. That would have been a bitch - here you are just a few yards from the finish line after 10 miles and you roll down the hill. I was passing people walking on the sidewalk - I know they heard me continuing to say this mantra and probably thought I was a loon... but too bad. With MS, at anytime, but especially when your body is stressed the mis-stepping can be more frequent. So at this point, (probably only to me) I feel like I am really taking very deliberate and higher stepping so I don't have the damn foot dragging. That would have sent me tumbling right down that hill. So saying the little mantra - kept me focused on my stepping. When I went through the finish, I was telling them I cannot stop and will be back with their chip. They already knew that I had MS and had to wind myself down to stop. It was really nice that I saw my daughter was there at the finish line. I really appreciate the support of my family and friends - it really touches me very deeply!!!! After I was able to stop off for that WONDERFUL shower then (OH YEAH) -- off to the bakery. Yes, I sat there and TOTALLY enjoyed my lefse and coffee!!!! Then off to the all the various Syttende Mai activities. It was a good day! The next day, I was up early getting everything together so that we could drive back to Stoughton for more fun!!! Now, I have to start preparing for this Saturday's race -- Pecatonica's 5K. Then back to working on my distance. I have to starting working UP MORE MILEAGE -- getting ready for the 1/2 marathon in September. I will work on planning a new route that takes me about 15 miles. I will do this about once a week or so... just to be accustomed to the mileage. I will have to do this REALLY early in the morning to beat any heat. The heat just tears down something quick... That is going to be my biggest hurdle with the training aspect... But I WANT THAT 1/2 MARATHON!!! I WANT IT BAD!!!!! Look - I did the 10 mile -- 100%!!! That was my goal - time is not that important. I know that I will not and never will be good at speed. The MS does not allow that... It is too hard to keep everything moving properly... But keeping a steady pace - this I can handle... Plus, to have the 10 mile and the 1/2 marathon accomplished BEFORE I officially become a Nana.... At least my grandson can say, that his Nana did these things. Plus, hopefully, I can continue running and doing the distance races... Maybe even someday... my grandchildren and I will be in a distance race together... Now, wouldn't that be AWESOME!!!! You never know.... I might be 5 hours behind them but - at least running it... That is my dream --- NEVER NEVER LET GO OF YOUR DREAMS.... ARE THEY OUTRAGEOUS... MAYBE BUT WHO CARES.... Hey - only 8 years ago when I was walking with my cane and/or walker and BARELY able to make it to the end of my block and back (my block is 3 house - I am in the middle... Tell me about it... Dreams can come true... how... you have to REALLY REALLY REALLY REALLY want it... I had to change my nutrition and exercise - DRASTICALLY... But look - I am in the best health of my life... I look at what I am accomplishing.... Yes - with Secondary Progressive MS.... It is possible!!!!!! So NEVER NEVER give up... DON'T LET MS WIN... MS is a monster - never let it win!!!! So ALWAYS AND FOREVER; MOVE FORWARD AND NEVER STOP!!!!!!!!!!!!!!!

May 16, 2013

It is count down time for the Syttendi Mai 10 mile run! It will be this Saturday - so ONLY 2 days to go!!!! I am INCREDIBLY excited!!! The weather is not going to be so HORRIBLY hot this year. Last year, it was well in the 90's when I finished. This year, they are even talking some rain. The rain would be OK - it helps to cool you down. I have NO PROBLEMS with that at all!!!! My main nemasis is the HEAT!!!! That really works on my MS symptoms and they just go nuts. But this is going to be MY YEAR!!!! I have made that determination. I have ran the course once and did great. Took it at a nice pace and had no problems. In fact, I was quite a bit faster than what I ran it last year. But speed is not my thing -- just to go nice and steady and run 100% - that is ALL I ask!!! I was disappointed that I did not run last weekend. I did not run AT ALL!!!! I know very strange. But the weather was crappy and I had a really busy week at work that just drained my energy down to the sub-basement. That is how it goes... Maybe by taking it easy this week and no big strainous runs - that will help me. Last night, I did get out and run a very short one. It felt good! I am just really being very protective of my energy level. I can not have it go down that low - I will never make it through the run. Then the rest of the summer I will start training for my 1/2 marathon in September. Yes, right now I am running 12 1/4 miles --- but I need to bring it up to over 13. So I will make a new route to up the mileage. I have my PRIZE all set for after the run. After my shower - directly to Fosdahl's Bakery for lefse and coffee.... YUMMMMMMMMY!!!~! Then the various Norwegian activities --- then lunch - hummus wrap and corn on the cob, more Norwegian activities then dinner veggie bratwaurst, corn on the cob, and some tofuti ice cream for dessert.... I know what I want... YUMMMMMMMY!!!!! What really does you in is about 1/4 mile before the finish line you pass the bakery.... The smells - OH MY -- it is a KILLER.... I think they should have the race END at the bakery. Just think of the money they would make!!!! Today I will not be able to get outside and run due to work committments. Tomorrow I will probably do a SHORT run and bodypump... but nothing to terribly hard... Then... it will be time to go!!! As ALWAYS AND FOREVER -- ALWAYS MOVING FORWARD!!!!!!

April 26, 2013

Only 3 (THREE) till Syttende Mai!!!! Yes, as you see I have my BEAUTIFUL new "MS Orange" running shoes. So I am ready to go!!!!! I have only taken my new shoes at twice for some shorter runs. My training schedule is the 12.25 route in Pecatonica this weekend, next weekend I will run the 10 mile race route into Stoughton, and the final run before the race weekend will be the 12.25 route in Pec. I have already printed out the 10 mile race route. Brian, my husband, will drive to each turn and guide me through the route. Then after maybe if I run well (or even if I don't) - some lefse and coffee at Fosdahl's Bakery.... (Yes, my life is pretty rough!!!) So that is the training schedule. So far, I have run EVERY WEEKEND leading up to the race. I have been able (by the Grace of God) to dodge the rain. I have run through snow and ice. I feel more comfortable and confident with doing the distance race. I truly do not care about the time.... I just want to maintain my nice steady pace and run 100%. If that happens - I am a 100000000% a WINNER!!!!!! Last night we received our Pecatonica running club shirts and had our picture taken by the local newspaper. It is always exciting to get our shirts. They look GREAT!!!! Black and sleeveless (my favorite) with neon yellow lettering and logo. They really look sharp!!!! Not sure if I will wear it to Syttende Mai or not... Wait and see or just wait till our 5K run in Pecatonica for the library. I personally prefer the sleeveless shirts for running. I tend to get overheated very quickly. This is probably due to the MS and being post-menopausal. Otherwise, everything else is going along. Jeremy seems happy with his life and anticipated new life with Anna. Elyse and Karl - OH MY!!!!! Besides expecting their first baby, they have gutted (and I MEAN GUTTED) the ENTIRE second floor of their house!!!!!!!! They are now making 3 bedrooms and a full bathroom in this space. Prior, it was 2 bedrooms and an attic closet, no bathroom. So are we talking a job --- OH MY!!!!! I did go over the other day and brought them some leftover food from one of our events and was able to see the progress. Right now they are living on the main floor. I did find out that I was going to be getting the tanning bed that was given to Elyse from one of our friends that passed away not to long ago. So I will enjoy that... As we know, people with MS need to have the light (Vitamen D). It does make a HUGE difference in my fatigue feeling. So that will be NICE!!! Besides my running and crosstraining exercise, I continue working on my quilting. Sewing is a great fine motor exercise. Not only do you exercise those fine finger muscles but you are doing something for someone else. That is the double BONUS. I continue with the lovely white on white quilt... White on white means -- ALL white fabric with ALL white thread sewn so that you see a scene or pattern. In this case, you see an elaborate snowman/snow-women scene... It will have beading also incorporated into it when finished. Yes, in some ways I think my daughter is trying to do me in... Or she thinks I am so busy with this quilt I cannot get all my run time in. She is so worried that I am going to really, really kill myself one of these days while running. I appreciate her concern but, I do have to keep running as long as I can. As we know, MS is very unpredictable. I am going with the RIGHT NOW - and I am running. How long, who know???? Maybe this is it or maybe I can go for YEARS.... I do not know... But I REJOICE and am VERY VERY VERY THANKFUL for EVERY SINGLE run that I accomplish!!! I am VERY VERY SERIOUS... For someone who has gone from walker to cane to running.... I know.... I am working my very damn-ness to continue running. But I have improved. The mis-stepping (MS symptom) has dramatically decreased also some of the other spastic issues. Not saying it is 100% gone... but more manageable and less frequent/intense. I still have to focus on my running and stepping ALL THE TIME. But I do notice that I am more able to look around and take in my surroundings more than just focusing so hard on my stepping. So each time, there is an improvement. You have to realize that this is ONLY MY THIRD SEASON of running.... Yes, for someone who NEVER NEVER NEVER ran before --- starting this sport at the age of 50 with Secondary Progressive MS. If you would have told me, four years ago that I would be doing this --- I would have told you straight forward that you WERE 10000000% NUTS!!!!!! THERE WAS NO WAY IN THIS WORLD!!!!!!! But - here I am and YES I am doing it.... As of today, I have logged 561 miles for this year.... and we are NOT even half through the year... I have taken on both the 1000 or the 1300 mile challenge -- I think I am in pretty good shape. As long, as I can continue throughout this year at the distances I am doing. So I will continue... as ALWAYS MOVING FORWARD!!!!!!!!

April 19, 2013

It has been a VERY VERY DEPRESSING WEEK!!!! I think for all of that that are runners (to whatever degree) we share a sort of familia kindship that is very hard to explain. We understand tremendous sacrifice, physical work, pain, joy, and friendship that comes from running. We all become sisters and brothers with one common bond. This week was the Boston Marathon, I did not know any of the runners personally, but we did have some runners from our general area at the race. In case, you had not heard, there was a bombing at the race. People died and gravely injuried from the blast. I truefully cannot really comprehend how this type of thing can happen or what causes people to do such a horrific action. It is truely beyond my comprension. I know that many runners (all over the country) have been wearing their race shirts all week (some under their work clothes). On Friday, we generally can wear more causal clothing. I wore my VERY best running shirt (to date) - my 10 mile shirt from Stoughton. I also made blue/yellow ribbon pin and barrett to show my support. As of this writing, they have caught one of the people and he was killed. Now they are still looking for the second bomber. There has been SO MUCH violence these last few years, what has made people so angry at each other. This is another concept - that I just do not understand. I am really a very simple person at heart. I love my life - I am able to go run where I want; I work on my sewing; I have a GREAT family; I live in a community where people know one another and still say "Hi!". On the whole my life is very low key and simple. I do not believe in retaining anger - why??? The person you may be angry at - probably does not care. It is just SUCKING energy out of you - why give that person that satisfaction? I have really learned this with my MS. One of the symptoms that MANY MS people experience is chronic fatigue. Believe me, chronic fatigue is a BITCH... There is NO, NO other term for it!!! It makes you so tired that the SMALLEST AMOUNT OF ENERGY is a HUGE effort... Sometimes that is as simple as talking or reading... So WHY would I or anyone want to WASTE their energy on something where there is NO resolution??? What is the point??? Anger is that - a waste of energy... Yes, I feel HORRIBLE FOR ALL THE BOSTON RUNNNERS, THEIR FAMILIES, AND PEOPLE THAT WERE AFFECTED by the bombing. I also feel VERY VERY sad for the bombers -- what makes someone become that mentally SICK???!!!! Now, don't think I am some bleeding heart that thinks everyone can be transformed.... NO - I do support capital punishiment in extreme murder cases. (Of course, this is one of those...) I have heard interviews from many runners saying that - this will NOT STOP THEM - THEY WILL BE BACK NEXT YEAR. That is the attitude many runners get.... even if you fall, or hurt yourself - you get up and go again and again and again. They are not a weak or fickle group of people. Look at me.... I used to do the 17 mile run/walk in Stoughton --- yes I am back!!!! It took me time - not up to the 17 mile -- but getting ready for my SECOND 10 MILE RUN!!!! The last few weeks, it has been horrible with the weather. We have had - snow, rain, and some sun. It is really weird. I did somehow get out between rains last weekend and get in my 12+ mile run. This week, has not been good for being outside. Actually, I think it is worse than the week before. But I have gotten in my 12+ miles EVERY weekend so far. Hopefully, I can get another in this weekend. The clock is counting down... Only 4 more trainings to go before the race. As ALWAYS --- MOVE FORWARD!!!!!

April 12, 2013

I am still continuing with my 12+ mile training... I have completed it THREE times and have five more opportunities. So I am doing very well with that aspect. This week I took a different route, just for a change of pace. I decided to try to run the Pecatonica Prairie Path. The state has been working on this path for quite some time. They have smoothed it out, put in bridges, and layed down limestone. I tried it first on Saturday and went out 7.45 miles. I found at least to the point that I went it was doable. So on Sunday, the weather was much better. It was sunny and really nice out (I even got a little sun burn.) Well, so out I trecked... I was able to get all the way to the end of the construction of the path that goes through a tunnel underneath Hwy. 20 (this was really cool) and starting into Winnebago. I turned around at this point... By the time I had finished the path and back I had ran 12.58 miles. This is further than my usual of 12.21. I know you say, that is not much... No, it is not --- but believe me I did feel the difference of that extra mileage. Not so much of being sore -- it was being tired. But I can live through tired. So this week, due to the extra long run and the weather being rainy and cold. I have run inside all week and my mileage is very low. That is OK - I think it is good to have some low mileage weeks. It just helps this poor old body to recoop a bit. Our run club days - the weather has been cold and misting rain. I chose to run inside. I cannot afford to get sick. For me to get sick - causes my MS symptoms to really escalate (on the big time scale). It could also send my progress backwards immensely. So I do try to be wise about my training. I am just pleased so far, with how I am doing with my distance. I am doing MUCH better at coping with the long distances. It seems to really help with taking the Vitamen B gummy and increasing my electrolytes. This weekend, I cannot do the Prairie Path. We have had non-stop rain all week. So I am back to the street. That is OK - it was nice to have a change of scenery. The other BIG news this week is that my son became engaged to a wonderful girl!!!! They met in Maryland through the Lutheran Church that he had been going to. They have not confirmed a date yet. The Marines is transfering him this fall to Colorado. So we will see what happens. I am just VERY VERY glad that he is happy. He has had a hard road in the love department the last few years and he deserves to be happy. So congrats and lots and lots of love to both of them!!!! Otherwise, with having to "play inside" all week, I am DYING to get outside and run. I should be able to get my long run in possibly tomorrow, according to the forecast. Right now, I just really want to stay on track with my training. That is very important! So remember - ALWAYS FORWARD!!!!!

April 5, 2013

Well, I am ANOTHER year older... Actually, it really does not bother me. I am in GREAT overall physical health, my running is coming along, and my MS is at a manageable stage. Both of my kids are doing well, productive, and overall happy with their lives. So really what more could I require.... I will tell you what --- to finish my training for the 10 mile race and complete the race; train for the 1/2 marathon and complete that in the fall; finish my quilt that I have been working on; start my planting outside; seal the deck to the pool; and on and on.... See I ALWAYS have a list of various projects... But that is GREAT!!! I like to be busy and productive. There is always something going on in my world even if it is an afternoon of watching movies - I am still working on my quilting or some such thing. OK - I have gotten in TWO (shall we count them T---W----O) of my 12+ mile routes.... With this weekend, I have 6 more to go before Syttendi Mai. I have been doing very well with not only my 12+ miler but also with my overall running. I have really been focusing on the distance aspect. I have noticed that I cannot just do big distance day after day. So I do take breaks and maybe just running on the Precor and not doing anything outside. This seems to help. I am still continuing with my overall exercise/strength/endurance training. So far, it is all going GREAT! Just last night, my running friend and I did 8.25 miles. I did have issues with my legs being "jumpy" and did wake me up last night. But that was my only issue. Today, I had planned to bring it down. I did some overall exercise this morning and will do BodyPump this evening. I should be rested for tomorrow's big run. You also have to think - I am not the youngest puppy in the pen. But I am out there trying - EVERY DAY!!!! Soon I will be a grandmother - I want to be active and play with the child, not just sit and look at him/her. We are finally starting to get REAL spring weather!!!! The snow is pretty much gone and we have been having some 50 degree days. I love running outside without all the layers of clothing. I would love to try running on the Prairie Path. I think they are supposed to paved it in town... I hope that is soon!!!! ALWAYS FORWARD!!!!!

March 29, 2013

YES --- I did it!!!! I was able to get my FIRST 12+ miler in last Saturday!!! I did have to wait till about mid-morning for the temperature to warm up a bit. It was in the 30's-40's during my run. It is a LONG run and even though I have been doing longer runs in town when you get past that 10 mile mark, I start to really feel it. I did make it all the way through. My only stop was at the gym (about a mile from my house) to use the restroom. I do LOVE running out in the country - the hills, fields, woods -- it is all so beautiful and peaceful. I did encounter a dog at one point that at first started running along side me but when I got outside his territory he seemed upset that I was not there to specifically play with him. That I did not like. All I did was shout, "NO" very sternly and pray that he did not take a big bite out of me. Well, he did not bite me (thank goodness) and I just proceeded on my route. After that run on Saturday, I was fine. My calves were bothering me a bit. So this week, I have taken it easy on the amount of miles. I don't want to get those HORRIBLE shin splints again. That was really really really PAINFUL. So I am trying to really watch and listen to what my legs are telling me. You have to think not only do I have MS in which my muscles tend to go spastic and rigid at anytime but I also have very tight hamstrings from the MS. I work on trying to loosen them up but, I think that the tightness is not helping the calf muscles. I am trying to do more calf/hamstring exercises even while sitting. Just doing a point and flex - is always feels very tight. I actually think that the whole tightness in the calves and flexiblity of my ankles/feet are throwing off my alignment. I am feeling the added pressure in my knees. That is not good. So I figure - back down the mileage a bit. Tomorrow, I plan to go out and get my second 12+ miler. Then I thought would be a good idea is 2 weeks prior to the race, I am going to run the route in Stoughton. The route is posted prior to the event. Even though, I do have a clue of the route from running it last year. I think this would be a good idea and even a bit calming to me. (Knowing that I accomplished it again - you know that psych thing!!) Yesterday, was our first TRUE taste of spring. We had temperatures all the way up to a BALMY 50 degrees. I was out there running in SHORTS!!! LOVED not having the underarmour pants on. We still have snow on the ground but it is disappearing!!! Another day or two of warmer weather and it will be GONE~!!!!!! Otherwise, I just want to really try to listen to my body and try to stay wise about my distance running. If I can get in my one long run per week and the rest to lower the mileage - that is fine. If I want to accomplish my goals of the 10 mile and 1/2 marathon this year, I am going to have to really watch it. I do not need to go back to BAD shin splints or have my knees blow out. Not only I am dealing with the MS I also have to think I am older.... I will be 53 years old here very soon. So that is 53 year old joints and muscles. I do try very hard to stay with my nutrition. It is very important!!! I have had this week a couple of times - a vegetable omelet made in the microwave. It is really good and very filling plus LOTS of protein. I use 2 eggs plus whatever veggies we have around... YUMMMMMMY!!!! Making it in the microwave - no grease so that saves on calories and fat. Plus, since I am increasing my distance it is important to have the protein so that I do not tear down all those muscles that I have been building up. Otherwise, I cannot wait till the weather stays warmer and sunny. It is so nice to get some sun on your face. I love that!!! So hopefully tomorrow, I can knock out another 12 miles!!! As ALWAYS AND FORWARD --- MOVING FORWARD!!!!!!

March 23, 2013

We still have snow on the ground. It is amazing the comparison from last year at this time. There is exactly 8 weeks before the 10 mile race in Stoughton WI. Todays HIGH should be in the mid-30's. The way it has been here that is a heat wave!!! Right now at 7:30a it is still in the low 20's. I have been getting in some moderate distance 7 to 8 miles but nothing higher in town. I really need to get out into the country and do at least 12 miles at a stretch. The cold air is really hard on me. My MS symptoms REALLY don't like it! My muscles tend to stay very constricted and I am more prone to having spasms. At least I have been running outside the last few weeks. I am still running in with the trail shoes on. It is amazing the amount of traction and stability they provide. At least for this time of year with loose sand/gravel and ice on the roads these are GREAT!! I would definately recommend to get trail shoes for runners for this time of year, no matter what your issues may be. I can't WAIT till when it is warmer and sunner... I can roll out of bed and jump into some short/tank top - and off I go... That will be SO WONDERFUL since this year, we seem to have the winter that will NEVER END!!! I keep saying that now it is getting toward the END of March - the snow/cold has to be over SOON. My worry is that we are going to go immediately from snow/ice to 90 degrees. Last years, Syttendi Mai race was HORRIBLY HOT. I have done the 17 mile the one year when it was raining/sleeting. (That was beyond HORRIBLE -- I have NEVER NEVER been so cold in my ENTIRE LIFE.) But that is one of the biggest factor with that race - it is not your ability to do the task of the number of miles but the environmental factors that you have NO CONTROL over!!!! That is what REALLY takes the toll on your body. I know what my task is... I have ahead in my ability compared to last year, even if I have not done 12 miles in one stretch for awhile. I have come close to the 10 mile and lived. So I really think I will be OK. The one thing that does concern me is the bladder control aspect. This may be a subject that to many is dispecable but, in the MS world this is very real. I have noticed that not just the cold but overall my bladder control has gotten a little worse. I do not mind having to "let go" while running.. but when it is cold to "let go" is another factor... Then you have something very very cold... That is not good... But you also need to stay hydrated so what is a poor MS girl with bladder issues to do??? When I run in town I can stop at various places and use the facilities but out in the country? The only thing I can do is go out in the field/woods and hope a snake doesn't crawl up me... As for my bout with "squishing tummy" after a long run.... Last week when I ran later in the day and had eaten, I did not seem to have the problems as much. So this morning I did have a waffle, banana with peanut butter and an orange. Plus I will water drink mix and my vitamen B chewy.... Let's see what that does??? All you can do is try!!!! I don't mind stopping to pee - to me as long as I have run before/after.. that counts as a 100% run time. I just stop my clock for that specific time. I know that during a race the clock does not stop JUST FOR ME TO PEE but - it is the priniciple of the thing to my poor little mind... I keep praying/hoping that soon VERY VERY VERY soon it will warm up. The snow/ice will be gone... It will I know that it will!!! Well, wish me luck... I will be out there in the next few minutes... I ALWAYS RUN AND ALWAYS THINK THAT I AM RUNNING FOR ALL THOSE PEOPLE WITH MS THAT CANNOT RUN!!! I RUN NOT JUST FOR ME BUT YOU ALSO... YES, I CAN RUN NOW --- BUT I DO NOT KNOW THE PROGRESSION OF MY DISEASE WILL I BE ABLE TO DO THIS NEXT YEAR OR THE FOLLOWING YEAR???? I DO NOT KNOW THE ANSWER.... I TAKE I STEP AT A TIME.... THAT IS WHAT I HAVE DONE THROUGH THIS WHOLE JOURNEY.. ONE STEP AT A TIME... From the times that I was using a WALKER to even go to the end of my block and back (my block has 3 houses and I am in the middle - so that is really really not far). TO THE PROGRESSION OF MAKING DOWN 2 BLOCKS AND BACK... EACH TIME A LITTLE FARTHER.... Was I really that bad ---- HELL YES!!!!!!!!!! So YES I KNOW... do I know what the MS neuropathy pain is ---- HELL YES!!!! DO I STILL HAVE IT --- HELL YES!!!! It is just not as intense... I still feel all the tightness pressure/MS Hug, ect... I have learned to move PAST IT... I believe that is the key... to learn (somehow) to move PAST it... HOW - you just set your mind to say "FUCK YOU MS!!!" and go for it.... No GREAT philosophical mind - very simple -- just GO!!!!!!!!!!!!!!!!!!!!!!

March 15, 2013

Yes, Sunday is March 17th. The day that we recognize St. Patrick. As an Irish American, I do celebrate St. Patty's day. I do not do many of the typical activities ie; drinking beer, eating cooked cabbage, or even corn beef... I do LOVE soda bread... Now to me that is the BEST!!!! I even started last weekend and made some for us. I even made us each a bread bowl out of the soda bread - that was AWESOME!!!! This weekend - I will make some more but I am thinking instead of soup maybe my carrot hummus. Then, of course, a green vegetable to be 100% diplomatic!!!!! Well, this week we started our run club in Pecatonica. That is ALWAYS fun!!! The first day, Tuesday it was actually snowing. I ran but it was cold. Then on Thursday - same thing - cold and snow.... But me and my run buddy, Lisa, we perserved. We are both trying to build our mileage all with the goal of the half marathon. I am closer than her on building my mileage. My strength in running is my endurance (going long distance) and her strength is speed. So I am teaching her how to pace for the long run and she is pushing me on going faster. So I believe it is a good combination... We are both gaining from each others attributes. The first night, due to the cold and organizing, we only ran 3.27 miles. Last night, we gave ourselves time for a good run before it got dark. So we went out earlier than the rest of the group and ran 6.35 miles. Lisa has not run that far this year... It was a good run - nice pace... Last weekend it rained pretty much the whole time. But by some stroke of God - I happened to be able to get outside and run during a pocket of time that it was dry. I did run 8.24 miles on Saturday. How this happened - who knows. (See God wants me out running...) I did stay in town due to a few factors: #1 the weather being so "iffy" #2 staying nearby restrooms (especially since I had a bit (get real - ALOT) of coffee before the run) #3 not really sure how far I could go and #4 roadways still having ice/snow/gravel on them making them slick. Now this weekend, we still have snow on the ground. The weather forecast is that it is to be about 36 degrees and overcast. So that will be fine for a nice longer run. I am hoping to "up my game" this weekend and do about 10 miles. That would be GREAT!!!! I am still having issues with upset stomach when I really do long runs and stress my body. I cannot eat after a long run. It takes some time (hours) before I can eat. Then I can only eat something pretty mild. I don't know why this happens. It may be due to a bottoming out of my electrolytes or potassium. I did get some chews to have before/after a run and also a mix to have in my water bottle. I want to see if this helps me. Yes, I am tired after a long run like that but nothing horrible. Saturday, I was still able to go out afterwards and do all my errands and shopping. Not an issue.... So I think that if I go out tomorrow I will take some of those chews and the water bottle mix with me in my pack. Let's see if that helps... Otherwise, I am ahead of schedule for my long run training for Syttendi Mai. It is 9 weeks till the run. I started my FIRST long run last year 8 weeks prior. I also started those 8 weeks doing 12 miles each week. But right now I am 2 weeks ahead of schedule. So this weekend, I really have to get the 10 miles in. Then after that, I will be doing my country or town route of 12 miles. That is my plan... Of course, this is barring weather issues, MS issues, etc.... I would love to get this tummy thing figured out. Muscularly I do not hurt after a long run, just a bit tired but nothing horrible. We did change the clocks this last weekend - more daylight (YES!!!!). That helps me so much!!! I was doing well then Wednesday, the fatigue hit hard... I really think it was the adjusting to the new time. Now, at the end of the week I am feeling more normal and with more energy. Now - I just want to get in a good longer run!!!! Remember ALWAYS FORWARD!!!!!!

February 22, 2013

OK --- I HAVE AN ANNOUNCEMENT!!!!!!! IT IS OFFICIAL!!!!!!! I HAVE SENT IN MY REGISTRATION FOR THE 10 MILE RUN FOR SYTTENDI MAI IN STOUGHTON, WI!!!! So you know what that means -- training has begun. Right now, due to weather issues I have been sentenced to running on the Precor machine. I did have an opportunity to get outside last Sunday - it had warmed up and alot of the snow/ice had melted. But there was a problem --- my damn body -- it was NOT going to happen. I was really wrestling with a bout of MS fatigue. So I spent the day watching old movies and working on the new "quilt from hell". This is what my WONDERFUL daughter has "sentenced" me to do for her. (Truly I am kidding - I really enjoy it.. but do love to give her a tough time - just for kicks!) So this weekend, I will be one with the Precor machine. That is all I am going to be able to do. We just recieved more snow last night (7") and it snowing again now. So it does not look like outside is going to work for me. The only hope is if Sunday it warms up and the streets are plowed really well. Never know... I will just have to wait and see... Plus, the other exciting news is that we are getting ready for our Run Club to begin in Pecatonica!!!! So I will be getting in more distance running in the evening (it will be light longer soon and warmer). As far as my overall MS issues... I have been holding fairly steady. As I reflect back, I have made leaps and bounds progress on my fatigue and overall stamina. Also, due to my various physical exercise my stamina for lifting and doing mundane tasks (like shoveling snow) is DRASTICALLY improved. I do still have issues with fatigue, spasticity, optic neuritis (blurred vision), tremors, some cognitive fog (MUCH IMPROVED), tolerance to heat/cold is improved but still hard for me, balance is DRASTICALLY improved... so as you see I am making progress. I still have ALL these issues plus some others... but I have them fairly in check. Probably my main issues are the fatigue and the spasticity.... My muscles get VERY spastic and YES IT HURTS... I mean ALOT.... Also I deal with the CONSTANT numbness and pins/needles feelings in my feet/legs/hands... sometimes it goes in my arms and face. All these issues that I have named --- guess what.... you cannot see them... But believe me there are VERY VERY VERY real to me. That is whole issue with MS because it attacks the nervous system - many of the pain or issues are not apparent to the outside. But that is the way MS works.... I have what is labeled --Secondary-Progressive MS. Here is the description: Secondary-progressive MS is more of a mixed bag. Initially it may involve a period of relapsing-remitting activity, with symptom flare-ups followed by recovery periods. Yet, the disability of MS doesn’t disappear between cycles. Instead, this period of fluctuation is followed by a steady worsening of the condition. People with secondary-progressive MS may experience minor remissions or plateaus in their symptoms, but this is not always the case. So this is why I CELEBRATE EACH and EVERY race and run that I finish. Because, I do not know when or if my body will force me to quit. I am VERY THANKFUL and REJOICE in every run and workout that I do. I know that each one of them helps to make me stronger and hopefully keeps the ravages of MS at bay a little longer. Soon I am going to be a Grandmother. I want SO VERY DESPERATELY to be able to go run and play with my grandchild. I want VERY DESPERATELY to be able to use the jogging stroller that I have in my garage with that child and maybe other grandchildren. I LOVE being active!!!! The more active the better!!!! So I will continue to MOVE FORWARD --- ALWAYS FORWARD!!!!!!