April, 17, 2015

Yes, a picture saids a thousand words... You guess it, I'm in the hospital due to the DAMN FUCKING MS!!!! So here's my story... I have on the whole been doing OK.. Still have issues with my running.. but I 'm in run club and run/walking about 3+ miles... I have also been working on my biking. I am trying to get ready for biking the Syttendi Mai run. So I will be biking a mininum of 20 miles over from Madison to Stoughton. Yesterday, all Hell broke lose... I was at the gym at my wee hours in the morning... I have been working on the various challenge exercises that have been laid out by my friend Laura... I just finished my second round of week 4 & 5 when all the sudden I felt like I had a VERY INTENSE feeling in both my legs. It was like a VERY INTENSE Charlie Horse. It literaly dropped me to the ground. I also had a very strong urge to poo. I crawled and hung to the walls to get to the bathroom. I was unsuccessful in achieving the goal... DAMN MS!!! My legs were still in hyper-spasm. I cleaned myself up the best I could and crawled over the shower. I was thinking that maybe a shower would help the spasms to calm down. I tried to take off my clothes but I realized that standing in the wet shower floor would probably be a disaster. So I put my workout clothes back on... After a short bit, my gym buddy, Velda, came in the locker room looking for me... I explained the situation and asked her to get my phone from my car. I called my daughter and told her the situation. She came and by that time I could not even stand up on my own. It was REALLY FRIGHTENING!!!!! She did not even feel confident that she could help me to the car. So we called Pec Ambulance to help walk me to the car. I will not ALLOW THEM to take me in the ambulance after my horror from my one and ONLY encounter with their services.(Another long story...) Elyse then asked which hospital to go to. I thought Swedes in Rockford since that is where my primary DR resides. That was not the wisest choice... There was a total of 2 of us in the waiting room... I waited for HOURS... Finally they put me in a room with a guy with active pneumonia who was not responding to his treatment. So he is hacking a lung... Elyse and I saw masks laying on the counter.. she grabbed them for us... We asked to be moved they said they could not do that,... Finally we moved to another private room in the ER... and waited and waited... It was forever... about 3 hours+. Elyse went to get something for lunch and ran into a DR, he asked what she was doing there. The amazing thing is shortly after she saw him the DR showed up in my room... HMMM... My legs where still really bad.... They had pulled a blood draw from me... and said that I had a UTI... surprise... I had no clue... so I got IV antibodtics for that... Then I got moved to a regular floor. They did not want to discharge me since I was unable to walk on my own. In the mean time, I called my neuro at UW and told him the situation. When I was in the room I saw their Neuro... He asked me about how many MRI scans that I have had. I told him I only had scans at my initial DX. He proceeded to say some things that I felt was very unprofessional about my neuro. That did not sit well with me... I ended up having brain and full spine MRI. Last night the pain was HORRIBLY intense in my legs. At first I recieved only a Tylenol.. It did not do a thing... I then asked for something stronger, which I recieved. That helped so I could at least sleep for a solid 4 interupted hours. Now I'm currently still in the hospital. They are waiting the MRI results before giving me any more steriods. I am still getting the IV antibotics for the UTI. The other very disappointing thing is that I missed the first day of our bike club. I have worked so hard with my other cohorts to get this started. There was a good group that showed up about 20 people... I was THRILLED!!! I can't wait till next week.. I'll be there in all my glory. So as always I will continue moving forward.. ALWAYS AND FOREVER FORWARD!!!!!

March 26, 2015

It has been quite awhile since I have written. It has been a VERY CHALLENGING YEAR!!! The DAMN MS has a powerful grip even with all my efforts. It still knows and does attack in the most vicous and unforgiving way... So my runnng last year was minimal. It was all due to the torn tendons in my left ankle. My last REAL run was for the Pec Library - Memorial Day 5K. Then I was doing an eminse amount of physical therapy. The PT was GREAT and actually understood MS. It is AMAZING how many health professionals do not get the various aspects and quirks of MS. We worked on strengthening my left hip and ankle, One thing, I was able to do without causing greater injury was biking. So, I bought myself my FIRST 21-speed bicycle. I called it my "big girl bike". I did a few organized bike tours. My longest ride was 66 miles!!! I really loved it!!!! Plus, over the winter I had to have a round of the YUCKY steriods. It was not due to the MS. It was some weird allergy. We still have no clue of what caused it. I was broken out EVERYWHERE!!!! I REALLY mean EVERYWHERE. So a good month of that horrible stuff. Yes, it did take care of the hives but it also left me with an extra 20lbs!!!! DAMN!!!! I did keep with ALL my regular exercise, indoors. I have even progressed with my Pilates to the point that I am teaching it at Summit Fitness. I have been substituting for my friend,Laura, but now I am a PAID instructor!!! I plan on getting certified in Pilates this winter. Right now, I have too many things keeping me VERY BUSY!! I am still working full time. Plus, spending as much time as possible with my little grandsons!!! The other thing I have started with a couple other folks is a BIKE CLUB in town. We are planning on starting on April 16th!!!! I am REALLY excited about that!!! I am still a member and believe it or not a leader of the RUN CLUB. I am going to lead the beginner group with a couple other people. To think, IN LESS THAN ONE YEAR... I was running 12 miles at a time now to a walk/run status. It is VERY frustrating! I try to keep with my mantra -- ALWAYS FORWARD!!!! I am going to do short runs now. Plus, my biking I can go as far as I want. I AM NOT ALLOWING THE MS TO TAKE MORE FROM ME!!!! I have set my goals for this year. They include: a triathalon and to bike to Madison, WI and back. I also plan on doing some bike tours. In fact, I am helping to organize a bike tour in Pecatonica on Memorial Day weekend. My usual first big run for Syttende Mai in Stoughton,WI will be different this year. Since, I cannot run it. I have contacted the organizers and told them I want to volunteer to bike the route and monitor the safety of the runners. This way I am still involved with an event I TRULY love!!!! I am not sure if I am biking the 20 or 10 mile runners. Either way, I am going to be putting on some decent miles and getting a workout. So as you see,even though the DAMN MS has tried its damnest to knock me down. I have picked myself up and going about things in a different route. As for my ankle situation, even with my continuing the PT exercises (3X/week), the alignment of the ankle and leg is getting worse. It is getting to the point, that I am feeling it in my joints. I had an appointment with my neurologist at the MS Clinic this week and that was one of our discussion points. He is having me go to the Ortho/Rehab to see about getting a brace for my ankle. I have been wearing when running a soft brace recommended by the PT and the podiatrist. But that is not doing the trick. The muscles in the ankle are rotating outward. So of course, I am feeling pressure in my knee and hip. This is NOT COOL!!! DAMN, FUCKING MS!!!!! So if getting a brace to help/keep alignment then so be it.... My joints are way too damn precious!!!! That appointment has already been set and in April sometime. Till then, I will wear the soft brace when I run or long bike rides!!! As for the rest of my LOVELY (ironic... smirk) symptoms, I have been having same amount of numbness in legs, arms, and face. My urinary issues have been more apparent. My night time frequency/urgency has increased to sometimes 5X per night. So he just prescribed me meds for that. My sleeping pattern is still SHIT!!! I go to bed about 10-11 and the damn legs are moving by 4-5am. So I get up and go to the gym. It is usually quiet there and it is mostly the same group of people. I tend to go off and do my Pilates and various floor exerices without anyone near me. He has offered me countless time something to help with the sleeping issue. I refuse!!! I do not want to be a ZOMBIE because of sleep meds. I am used to my weird sleep pattern. I just want to stop the endless trips to the pottie!!!! It does sometimes upset me that people do not SEE MS always. Therefore, if you are not using a wheelchair or cane or wwhatever that everything is just PEACHY! Well, I can tell you that it is NOT PEACHY.. MS SUCKS!!! So --- here I am still fighting and taking alternate measures to keep moving forward. ALWAYS FORWARD!!!!

July 12, 2014

Well, I have NOT been running this summer due to the tendon tears in my left ankle. This has been caused primarily due to the MS. What has happened is that the MS has affected the muscles not only in my left hip but in my left ankle. We worked on strengthen these muscles but, I still tend to bring my left foot inwards when I walk or run. So the problem is not going to be able to be resolved. As I know, the MS will march forward and continue to attack my muscles. I have done my very best to strengthen my overall muscle tone and progress. But the MS is doing its very best to knock me down. I have been continuing with my biking and have really increased my overall endurance. Believe me --- this whole issue has been MORE THAN FRUSTRATING AND VERY DISHEARTENING. (YES - EXTREME UNDERSTATEMENT!!!) My therapist and I had a very frank talk last Tuesday, even through I have made progress I will never be fully correct with my ankle. The MS is causing the left foot to twist inward. No matter what I do and what exercises I do I cannot force it to stay straight. I can get it straight but, as soon as I fatigue the foot goes back to the inward twist. As one of my good running friends told me, look at what I have accomplished 3-10 mile runs and one 1/2 marathon. We both started running at the same time with no prior running experience. Yes, I have worked VERY, VERY, VERY HARD for these accomplishments. That is not a question but, I don't want the journey to end. The therapist told me that best I can do with my running is short runs, ie 5-K's. Those are nice but, I REALLY enjoy the long runs. But I am getting out and getting in LONG bike rides now. I have really progressed with this sport and truly enjoy it. So maybe this is where I am supposed to go now. I am not giving up by ANY STRETCH!!! I just need to change gears. Right now, I am trying to heal the tendons and will participated in the Stoughton 5K at the end of the month. If I have to walk a good majority of it... so be it. Then maybe if I just cut back on my running and only do the Stoughton 10 mile and the Pecatonica runs in May and then nothing till later in the season. I don't know... All I know is that I have to keep moving forward, that much I know. So as the MS is trying to really mess with me - I will find other avenues to keep moving. So as ALWAYS AND FOREVER --- FORWARD!!!!

June 5, 2014

Yes, soon I will be the Nana of two wonderful grandchildren!! Today, as I'm writing this Kollin is napping in my arms. That is pretty sweet! Well, I have NOT run since the Pec Memorial Day race. I have started seeing the therapist this week. He is the same one I saw before. He put me through a few exercises, ultrasound, and assessments. Told him I was still doing the hip/balance exercises 3X per week. He wants me to continue with those. I told him I plan to be released by the end of July. At that time, I plan to start training for the 1/2 marathon in September. The therapist was not so sure about that or me to continue with running. I was VERY upset! (Understatement). But then I thought look at where I started and NO ONE ever thought I could do what I am doing. So maybe I could get back to it. I am keeping my exercise up and increase my biking mileage. So even with this set back - I am still moving forward. ALWAYS FORWARD!!!!

May 23, 2014

Well, I LIVED through the 10 mile race in Stoughton, WI!!! Yes, tendons are still in tack!!! YEA!!!!! This was my THIRD year of completed that race. I also received my very coveted race shirt. YOU ONLY RECEIVE THIS IF YOU FINISH!!!! So they are really special and worn with GREAT PRIDE AND HONOR~!!! I also saw my best little grandson when I was done. That really made me very happy to have my family there in support!!!!! This race was specially difficult due to the tendon tears. I ran it 100% but, really took a very easy pace. I did not want to push to hard and have those tendons snap. I was already PUSHING THE ENVELOPE TO THE EXTREME!!! With the more relaxed pace, my time was longer. But oh well... I finished and did not snap any tendons. So I am good with that!!!! Now, this weekend I have the Pecatonica Crooked River 5K. That will be my LAST TIME RUNNING FOR THE NEXT 6-8 WEEKS!!! OH -- I am going to die without running!!! But I am going to focus ALL MY OUTDOOR running time to biking. I do have my new "big girl bike" and that is what I am going to do!!! Maybe all this will make me a better distance runner. Who knows... I am trying to think very positive. I was thinking during the last couple of miles of the Syttende Mai race - how this was my VERY LAST LONG RUN for 2 months!!! So I decided to celebrate the run. I was celebrating the whole way of that race. Every person I passed - I would tell them what a great job they were doing and to keep going. I know that the race is very difficult. I don't know what race these people were doing but, it did not matter. There were 3 races going on simultaneously (the 10-mile, 20-mile, and 17-mile walk/run). The weather was PERFECT... It was cooler, a light breeze, and sunny. You could not have asked for anything better. After I got through the race, showered, and off for my prize -- coffee and lefse!!!! The rest of the weekend, I was enjoying every activity that I could!!! It is ALWAYS SO MUCH FUN!!!! This whole week I have really been resting that tendon... NO AEROBIC activity... only Pilates and biking. So hopefully, I can cruise through the 5K race. I will do the same thing... just run... I am NOT GOING TO PUSH IT... just take it easy. Then after the race, breakfast with our running club. That sounds like a pretty wonderful way to start a holiday weekend to me!!!! Remember ALWAYS AND FOREVER - FORWARD!!!!

May 16, 2014

May 7, 2014

Exactly 10 days to the 10-mile Syttende Mai race in Stoughton, WI. I did get to Oregon (where race starts) last Saturday. I ran the full route, never stopping. I just kept a steady slower pace. My main goal is, as always to run it 100% and to stay upright. It took me 2:29 which was much slower than previous years. But then I was not dealing with tendonitis. I STILL have not seen the podiatrist since our first appointment because I have been rescheduled. I did have the MRI done and have read the report from the radiologist. I am supposed to have an appointment this Friday, we will see what he said. I just keep running and eating a lot of ibuprofen. Which is not really a good thing. At least, I know it is not a bone spur. That could be devastating!!!! So far this week, I have run 4 days in a row. I have not done that in a long time. The weather the last few days has been decent. But I continue with my regular active lifestyle. I don't believe in slowing down. I refuse to allow the MS to get the upper hand. This will be my THIRD year of doing this race. That alone is AMAZING!!! I NEVER would have thought -- me with Secondary Progressive MS and NEVER running before could be at this stage. It has been a LONG, LONG climb. Starting at the very pit -- weighing 270 lbs and using a cane/walker only FOUR years ago! I REFUSE to go backwards. I enjoy being active and plan to do my damnest to stay that way!!!! I was hoping to maybe do the 20 mile race this year but, it was not meant to be. Maybe next year, who knows. The one truly AWESOME thing is at the finish line my new grandson should be there. He can see his Nana running hard. Next year, I will have another grandbaby greeting me at the finish line. That is SO VERY EXCITING!!!! Right now, I am hoping for decent weather. I plan to run it easy and steady. So now and always --- forever forward!!!